
This is from the Carepages today...
well, things coulnd't be going better!!!! Alexander has been steadily improving over the past few days. He is off the ventilator...and in fact off oxygen altogether. He is slowly being weaned of some of his drugs(which will take months). He is now off TPN (I.V. food) and completely on breast milk through a tube directly to his intestines. Over the next few days they will check to see if he can swallow (after being on a ventilator so long) and they will gradually work into feeding him by mouth. It may be a bit of a bumpy road though because he hasn't had anything in his tummy for 1 1/2 months. He is currently on blood pressure medication, as well as 3 different antibiotics; he had a fever and they are not taking any chances on infection anywhere. Today he was awake and smiling the whole time I was there (almost 3 hrs.) He does get cranky alot, especially if they scrimp on his anxiety drugs. His creatinine has gone up just a bit from the contrast dye they had to use for one of his surgeries last week, but hopefully that will work its way back down. In talking to the surgeon today, he said that Alexander right now has more issues than many kids, but typically the repair they will do on his heart is a curative surgery (most heart repairs are NOT curative). So if Alexander can get through some of these other problems he has(ie:kidneys) then he will be a pretty healthy normal kid if he can make it through! SO, to sum it all up, he is great great great and we are so greatful for continued prayer for him. We have seen such miracles in his life and we are just enjoying him "waking up" after such a long time.
There is another post under this one if you are interested.






I get email updates when the carepage is updated so I've been reading faithfully. Glad things are looking up.
ReplyDeleteSo glad he is doing a little better. I will keep praying for the little cutie!
ReplyDeleteThis is so great!!! I'm glad to hear the little guy is pulling through. :)
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