Blazisms and some random news!

Those of you who have met Blaze know that he's a little crazy. He says and does some pretty off the wall things. He makes me laugh daily. Every day he changes his name. He has been Petie Parker, and Optimus Prime so far in Primary. Today he is Iron Man, yesterday he was Lego Batman. When I dropped him off in Primary on Sunday, he told me he didn't want to go. I told him he needed to. He then proceeded to tell me he quit church. "I quit this place Mom!" were his exact words. He also tells me he is the king of everything and I have to do what he says. There are many more but right now my brain is malfunctioning and I can't remember them.

The following is from the carepages. It's the last two updates.

Posted Jan 19, 2009 3:28pm

Well, this last week has been full of ups and downs. Colby and I both turned a year older and are sure feeling it! COlby and the kids came up to Primary Childrens on Thursday and we were able to go do some fun things in Salt Lake. On the flip side, we had a "Care conference" with Alexanders doctors. It was a pretty tough meeting, even though Colby and I were both very aware of what we were going to hear. As stated in other updates, it is the doctors belief that Alexanders kidneys have little chance of recovery and that being such he has little chance of a good outcome during heart surgery ...and because blood flow is again shut off during surgery, his kidneys will be further damaged. They cannot do dialisis or transplants.
The good news is that over the last 9 days, Alexanders creatinine levels in his blood have dropped from a 3.16 to a 2.26. This is great news in our book and helps us keep hope. They are also going to attempt to take out the ventilator today. This is not really good or bad news medically speaking since he still cannot be held, and really the ventilator has not being doing much. It is just so that he has fewer foreign objects in his body that could allow infection or other problems. I think it is great news since he cannot turn or move his head with a ventilator in and it must be really uncomfortable.
We are greatful for all the prayers and know that God hears and answers prayers. We are very hopeful that Alexander will have a complete recovery. This week I (Marsha) am home in Challis to catch up on house work, but mostly to spend some time with our older kids.

January 21, 2009

Today is a good day for us. They did take out Alexanders ventilator and he is doing okay. He is on oxygen and struggles to breathe a little bit but not enough to put him back on the ventilator. It is mostly due to his heart getting bigger from working so hard, and it causes problems with the lungs. The other good things is that they are taking out his femoral artery line, which means he can now be swaddled and held! Yeah. Its hard for new momma's to go with out holding their babies :-). It has been 3 weeks since we have held him or heard his voice because of the ventilator and artery line, so we are quite excited to go back to Salt Lake and see him. Alexanders liver is struggling to break down the food they give him through his I.V. so they are going to slowly start him on some breast milk and see how he does. The last bit of good news is that his Creatinine level is still decreasing. He is at a 1.9 now which is still quite elevated but he is slowly beating the odds!! Thank you for all of your prayers. We can definately see them at work. The Lord is sure taking care of us thanks to your requests. We cannot thank everyone enough. We will continue to take one day at a time and trust in Heavenly Father.

Also under the good news category, Kaia is a healthy happy baby. She is about 16 lbs. She is also getting her 4th and 5th teeth. Can you believe it? She is growing up way too fast. She can pretty much navigate her way to any toy that is out of her reach. She absolutely LOVES Peek-a-Boo, but only if she gets to pull the blanket off. She loves to talk to us. She says Da-Da all the time. She is pretty serious most of the time, but every once in a while we get a littlelaugh out of her.
Jercie is loving school and learning a lot. I can't believe that she is reading and doing math! WHAT?!? She is 6 going on 16 though. This morning I told her to change her shirt and she told me she wanted to wear her pajama shirt. I said she couldn't because she slept in it. She just sat and gave me the evil eye. I told her that she better be up and changing it by the time I got to 3. She stood up looked me right in the eye and said, "Idon't like you." She was very calm as she said it. I just told her that I love her anyway. She was over it by the time she got on the bus.